Guest Speaker – Louise Hall. In 2019 her daughter Charlotte was diagnosed with Lebrunes Syndrome which is a genetic disorder that was first discovered in 1995. Charlotte was only 9 at the time. They were living in Townsville but decided to relocate back home to Numurkah for family support. Lebrunes Syndrome is a bit like Parkinsons, & Charlotte has tremors on her left side. The disease often causes cysts to develop & blow up which need to be surgically removed. Trial treatment is currently being undertaken with Zebra fish in the UK. There is limited funding for treatment as the condition is so rare. A family trip to the Gold Coast is scheduled in March thanks to Make A Wish. Charlotte is about to commence secondary school with SMOTA & they have been putting down flat ground in places for her plus grab rails & a support worker to assist her where necessary. Charlotte is living her life, having fun & her favourite thing is talking to people so if anyone spots Louise & Charlotte down the street, please stop to say hello.